Founded in 1989 by Dave and Lynn Frohnmayer, the Fanconi Anemia Research Fund has raised more than $25 million for medical research and family support.
Seventy-four universities and institutions have received support from the Fund for 225+ research projects to study FA. Many of these researchers have gone on to receive major grants for FA research from the National Institutes of Health and other governmental and nationwide agencies. Grants from private foundations have helped us move FA science faster than ever thought possible.
In addition, the Fanconi Anemia Research Fund, Inc. produces a number of publications containing clinical, scientific and family support information. These publications are sent worldwide to thousands of researchers, physicians, and families.
The Fund convenes an annual International Fanconi Anemia Scientific Symposium at which researchers from around the world present the results of their research. In addition, the Fund sponsors a variety of smaller scientific meetings, gathering researchers together to discuss such topics as: bone marrow transplants, gene therapy and gene editing, squamous cell carcinoma and acute myelogenous leukemia.
The Fund offers educational and support meetings for families and adults affected by FA, as well as providing ongoing telephone, letter and e-mail support to families affected by FA worldwide.
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