Faced with insurmountable odds, but determined to save the lives of their children, a group of concerned parents came together in 1955 to form the Cystic Fibrosis Foundation. At the time, very little was known about cystic fibrosis, but the tenacity and strength of CF families laid the groundwork for monumental progress in research, care, and treatment of a rare disease. Today, because of their hard work and the support of generous volunteers and donors, many people with CF are living into adulthood. Yet, we still lose precious young lives every day and will not be satisfied until there is a cure for all those living with this disease.
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The Cystic Fibrosis Foundation welcomes participation on our Facebook page and we encourage you to interact with us often. It is our goal to provide those in the CF community with a forum for dialogue and an opportunity to learn more about the progress being made toward a cure.
Individual medical questions are best answered by your CF doctor or care team. Please use caution when searching for health information online, and always consult your doctor before making changes to your or your child’s treatment regimen. You should not rely on information posted on our page to suggest a course of treatment for any medical condition nor should you disregard medical advice from your doctor or deviate from any prescribed treatment program because of what you read on this page. Please note: giving away, sharing or selling medication or medical equipment that requires a prescription is against the law, and will be deleted from our page.
To protect your own privacy and the privacy of others, please do not include phone numbers, mailing addresses or e-mail addresses in your posting. You participate at your own risk, taking personal responsibility for your comments, your username, and any information provided. This is a public site and visitors do not have to be a member of Facebook to view comments posted to this page.
In accordance with Facebook’s rules, users must be 13 years of age or older to participate on this page. Posts made by those identifying themselves as younger than 13 will be deleted.
Please note that posts containing personal attacks, malicious or offensive speech, profanity, or illegal material are prohibited, and will be deleted without warning. People with CF are diverse in their experiences, personalities, and cultures. Please do not make assumptions and be sensitive to others’ perspectives. In addition, multiple postings of the same content may be construed as spam and will be deleted.
We reserve the right, at our discretion, to remove any post that is deemed unintelligible or irrelevant, or to block a user's privilege to post to our page.
The appearance of external links on this page does not constitute official endorsement on behalf of the Cystic Fibrosis Foundation.
All content posted by the Cystic Fibrosis Foundation is the property of the Cystic Fibrosis Foundation and is subject to copyright laws. For more information, please visit #Policy_on_Intellectual_Property.
The Cystic Fibrosis Foundation is a 501(c)(3) tax-exempt organization and therefore prohibited from directly or indirectly participating in any political campaign. In accordance with the Internal Revenue Service regulations, any posts determined to be political activity will be removed.
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